The Dutch children with Marshall Smith Syndrome (Nina, Adriana and Joas) in the media.
In Dutch Newspapers, on Television and Radio there was a lot of attention for the Marshall-Smith syndrome.
TV |
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25 February 2008 |
Netwerk about Rare Diseases |
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29 February 2008 | RTL News about Rare Disease Day |
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29 February 2008 | Movie of the Dutch Rare Disease Foundation |
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21 March 2008 | Netwerk about Joas en Nina en the trip to London |
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20 November 2008 | Avro Children's Hospital about Joas and MSS |
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1 January 2009 | Jeugdjournaal about MSS New Year's Dive 2009 |
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TV L1 about MSS Family Event | |
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The Week of ... Henk-Willem Laan (MSS Family Event) | |
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8 April 2009 | Hart van Nederland about Nina en Rare Disease Day 2009 |
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7 October 2009 | Hello Goodbye about arrival of Rafaéla from Brasil at Amsterdam Airport. |
Newspapers |
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27 February 2008 | Nederlands Dagblad about Joas and rare diseases |
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28 February 2008 | Algemeen Dagblad: about Rare Disease Day |
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29 February 2008 | Artikel from Henk-Willem Laan with Opinion about Rare Diseases |
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1 March 2008 | BN/DeStem about Rare Diseases |
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27 March 2008 | Noordhollands Dagblad about Adriana |
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24 February 2009 | De Telegraaf about Adriana and Rare Diseases |
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25 February 2009 | Five questions to Henk-Willem Laan |
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2 March 2009 | Trouw about MSS Family Event |
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2 March 2009 | Hope for Children with Marshall Smith Syndrome (multiple media) |
RADIO |
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29 February 2008 | Radio 1 Kassa about Rare Disease Day 2009 |
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28 February 2009 | Radio L1 about MSS Family Event |
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25 February 2009 | Villa VPRO about MSS Family Event |
