Watch our video about the Marshall-Smith Syndrome on youtube. Subtitles in many languages!
MSS Familienwochenende
What a wonderful MSS Family Event we had 6-9 October 2017 ! It was a great weekend with wonderful interaction, pampering and opportunities of sharing all insights into MSS. We also celebrated 10 years MSS Research Foundation. Next family weekend: September or October 2019.
June 2013; it was again a wonderful Family Event! Next event expected in 2015, we will keep you informed.
A great weekend in September 2015! From 18-21 September, the fourth MSS Family Event has been organized in Valkenburg, The Netherlands. Families from the USA, Spain, Ireland, France, Israel, Germany and the Netherlands had a beautiful weekend. A lot of time for contact between families with MSS-children.
For the children, there was a beautiful musicprogram. On Saterday, first results of the MSS Research program were shared with the families. And also the MSS Standards of Care have been presented. Also, there was a workshop about communication.
And there was enough time to relax: a mountainbike challenge for the dads, a creative experience for the moms.
Watch the video: