MSS families worldwide join together to fight for the same purpose: to give their child with the Marshall-Smith syndrome (MSS) a better life.
MSS is a rare and serious syndrome. Many MSS children die in early childhood from severe respiratory problems. They all have an accelerated bone aging, mental retardation and often eye / ear problems. The problems can vary from patient to patient, but the children with MSS have one thing in common: a very cheerful zest for life!
In connection with all joint families worldwide the MSS Research Foundation organizes contact with fellow sufferers, initiatiates medical research and works on standards of care. All activities are dedicated to improving the quality of life.
Join us and help these beautiful kids!
