Rare, but not unknown anymore
Our slogan: “Rare, but strong together!” is part of our mission. Marshall-Smith Syndrome is an ultra-rare disease, only 50 children worldwide have this syndrome. And what about "strong together": parents, doctors, carers and volunteers worldwide are doing all they can to contribute to a better life for children with MSS and their families. Have a look at our mini documentary to get some closer to families with MSS.
Rare, but strong TOGETHER!